Finally, I am SO stoked (and terrified) to say that I finally have some answers.

As it turns out, I have a thing called Tarlov Cyst Disease, paired with a high-flow cerebral spinal fluid leak — which basically means the nerve roots coming out of my spine have created tumors filled with cerebral spinal fluid.

When they burst, the fluid pours everywhere into my body, *except* my brain. (We need it in my brain so I can do some cute things like not seize, stroke out, or die. )

I have multiple cysts on both sides of my spine, from my brain stem down to my butt, compressing nerves along the way and starving my brain of essential nutrients. Some of them are no biggie, but the two big tumors in my neck are making it hard to keep kickin'